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Advocacy/Legislative NEWS

WELCOME

Vicki Tiahrt

Our new legislative leader!

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March 1975

Rep. Parren J. Mitchell of Maryland, a person with Vitiligo presented H.R. 5264 to the house floor with 10 sponsors but it got no where.

 

February 1977

AGAIN, Rep. Parren J. Mitchell presented H.R. 3520 and got ONLY 16 sponsors, one of whom was Rep Shirley Chisholm (NY). This bill would authorize the Secretary to make GRANTS and enter into contracts with such entities and with individuals for projects for:

  1. research and research training in the diagnosis, treatment, and control of vitiligo; 

  2. the development of programs to educate the public concerning the nature and inheritance of the disease.

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It has been 48 years since VITILIGO was first presented to the U. S. House of Representative. This is our CAUSE and it is time that attention be given to this matter. We are working on a post-card but in the mean time, we ask that in our National Vitiligo Community, that every State group would make contact with their Senator and State Representative in Congress and share the FACTS about Vitiligo and SHARE what our Community are ASKING for -  - It's TIME:

 

  • Full Insurance coverage for Doctor visits and treatment for Vitiligo

  • Correct designation of Vitiligo as a disease NOT a "mere cosmetic issue"

  • Early education curriculum to include Vitiligo as a skin condition

  • Attention given to the bullying of Vitiligo patients, especially children

  • Full Coverage for mental and emotional care for Vitiligo patients

  • Funding for Viable support groups for Vitiligo patients

  • A National Vitiligo Act that recognizes our condition and our plight and also recognizes June 25, which is celebrated globallyas our day...World Vitiligo Day!

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