Who is VITFRIENDS:
A proud BRONZE STAR member. (https://www.guidestar.org/)
We are a diverse group of individuals united by a common skin condition. We were created to be a resource and a social network for individual with the condition known as vitiligo. We support the whole person....mind, body and spirit.
In 2004 an idea was birth.
In 2005 Valarie join VSI and logged in as VitFriend and there she met Patricia of NYC.
In 2006 was the first physical meeting between two women who were passionate about their vitiligo and supported by their spouses.
In 2007 the four traveled to Williamsburg, VA to attend the VSI conference and seek permission to become an affiliate of VSI but was denied.
In 2009 VITFriends was officially launched in Boston, MA with a conference each year following.
In 2014 became a registered 501c3 non-profit MA organization
In 2015 organized the first MA Vitiligo Rally on our State House Steps
In 2016 lead organizers of the first USA Vitiligo Rally on the Capitol Steps in Washington, DC
In 2018 hosted the National Vitiligo Conference (WVD) with 311 attending at University of Massachusetts
In 2019 launched the first Book Library drive getting Vitiligo Story books into elementary schools across the USA
VITFriends is a patient advocacy group that encourages, educates and empowers our Vitiligo Friends to know all there is to know about their disease; to advocate for themselves; to be comfortable in their own skin and to LIVE their best life NOW! Our ultimate desire is to see changes for our community in the areas of: (1)Vitiligo Legislation (2) Correct Insurance labeling (3) Funding for Research and (4) Funding for Support Group Programs.
VITFriends a registered non-profit charitable 501c(3) Massachusetts based organization. We have grown over the years, to include a worldwide following, a total of 12 VITFriends affiliates and other partner groups in several USA states and also our partnership with VITAMIGOS, Cuba; VITSAF of Ghana, Africa and Global Vitiligo Foundation.
Since Vitiligo's greatest affect is the QUALITY of LIFE for the patients, our aim is to offer encouragement and make connections with others who can understand what another Vitiligo person goes through.
VITFriends mission is to raise public awareness and offer education about vitiligo. As we support and encourage, we aim to enhance the quality of life of those affected by vitiligo through our efforts of networking and sharing of information.
Our VISION is to inspire hope, as we bring people with vitiligo together every year. We want to UNITE for the purpose of supporting, encouraging and building each other as we provide a listening ear and a sounding board for each other. Financial support will enable us to never turn anyone away from our annual gathering.
Our NON Discrimination Policy:
VITFriends is a 501(c)(3) nonprofit organization. VITFriends is a group that is open to anyone with Vitiligo.
Therefore, we want to make it known that we are committed to providing an environment that is free from discrimination because of race, color, religion, creed, national origin, ancestry, disability, gender, sexual orientation, or age.
VITFriends does not exclude people or treat them differently because of any of the above. If you feel in anyway that you have been discriminated by our group, please do not hesitate to contact us at: email@example.com ... or ... 844-374-3639
Our desire is to see people with Vitiligo come together from ALL walks of life all in one place. A place where we can share together, cry together, laugh together and learn from each other.
VITFriends would love to raise enough funds to be able to assist children of families who would love to attend our conference.
Our goal is to educate each other and educate the general public about vitiligo. Bringing awareness of the condition is very important to truly understanding the condition.
VITILIGIANS......we are a Royal People!
Our COLOR is Purple. The color purple is often associated with royalty, nobility, luxury, power, and ambition. Purple also represents meanings of wealth, extravagance, creativity, wisdom, dignity, grandeur, devotion, peace, pride, mystery, independence, and magic.