VITILIGO Friends "VITFriends"

A Vitiligo Support Community of FRIENDS

               UNDER CONSTRUCTION

"Children, Research, and Hope for the Future"

What is World VITILIGO Day?

World Vitiligo Day was first celebrated in 2011 and has since become a global event with the purpose of raising awareness and recognition of the bullying, social neglect, psychological trauma and disability of the millions of people affected by vitiligo.

The first national patient-led World Vitiligo Day Celebration and RALLY, that saw folks from Africa, Russia, Canada and the USA, was held on the U. S. Capitol Steps in Washington, D.C. in 2016 and hosted by VITFriends. Then 2017, vitiligo organizations from across the U.S and Canada, along with seven renowned U.S Dermatologist, specializing in Vitiligo and two foreign researchers gathered in Detroit, MI for our second patient-led World Vitiligo Conference that was hosted by V-Strong and Lee Thomas Clarify Foundation.

 

June 25th - World Vitiligo Day - is a day when millions of people across the world gather to bring awareness to Vitiligo, fight prejudice and raise funds for research, support and education. Thanks to the efforts of Yan Valle, CEO Vitiligo Research Foundation,Vitiligo is NOW listed on the U.N. Calendar of Eventshttps://www.un.org/development/desa/disabilities/calendar.html

Today, World VITILIGO Day is certainly a Global Celebration!

 

The Genesis of our RALLY / Conference:

VITFriends (Vitiligo Friends) Support Group’s President and  Founder, Valarie Molyneaux, after learning in 2014 about H.R. 3520 of 1975 and 1977 which was presented by Rep Parrin Mitchell to the 94th and 95th Congress to address VITILIGO, still sits dormant, she begun to talk with other patient group leaders about it.

In 2015 Valarie encouraged the Boston VITFriends team to RALLY on the Massachusetts State House Steps. They garnered the support of Dr. John Harris of UMass Vitiligo Clinic and Research Center, Yan Valle, CEO of Vitiligo Research Foundation, Senator Gloria Fox and we had an 45 minutes audience with the Senator and shared about Bill H.R.3520, the needs of our global Vitiligo Community and our local support group. That first VITFriends Rally was a success!

Then in 2016, Valarie had the vision for Washington, D.C! After a conversation with Natasha of Atlanta and Kim of Detroit about their groups working with us and getting their commitment to fully participate if she coordinated a RALLY on the U. S. Capitol Steps, plans were put into motion. With a resounding UNIFIED - YES response from the ladies about working together, and the hard work of Rev. Dr. Wallace Henry, III (VITFriends D.C. Leader) who helped to coordinate our 2016 Rally, it was a HUGE success!  

 

U.S. World Vitiligo Day 2018 

Our mission is to sound the alarm that: (1)VITILIGO is a skin disease worthy of attention. (2)That Funding for Research into the Cause and Cure of Vitiligo is NEEDED. (3)Adequate insurance coverage is NEEDED. (4)Federal and Local funding for support is NEEDED.

Our theme speak to the HOPE that we ALL hold dear, for Research into a Cause and Cure in our generation and Hope for the future of our Young people who suffer bullying, social isolation, trauma and more all because of their Vitiligo. 

 

What should you know about Worcester?

Worcester, known as the “Heart of the Commonwealth” due to its location in central Massachusetts, offers visitors historical and recreational experiences that are well worth the visit. Far from simply a sleepy suburb 40 miles east of Boston, Worcester is the second-largest city in New England and was host to political landmark events such as the first public reading of the Declaration of Independence in the state (1776), Shays’ Rebellion (1786-7), and the first women’s rights convention (1850). An industrial leader in household goods like textiles and envelopes, Worcester also boasts Elm Park, the first public park in the country, and idyllic Lake Quinsigamond, where local colleges assemble to compete in rowing.

Worcester was the birthplace of the “smiley face” and the birth control pill, and is now home to major biotechnology, research, healthcare, and higher education, including 9 separate colleges and universities.  Founded in Worcester in 1962, the University of Massachusetts Medical School (UMMS) is the only public health science center in the state, and is the “state’s medical school”. Partnered with UMass Memorial Health Care to provide excellent and affordable medical education and to increase the number of doctors serving in underserved areas of the state, UMMS has been repeatedly nationally recognized as one of the top institutions for training primary care doctors in the United States. The institution is also home to many advancements in medicine and biotechnology such as vitiligo, HIV, diabetes, and infectious diseases.

REGISTRATION

World Vitiligo Day Conference COST:

Friday Night ONLY    -    $40.00     (Tee Shirt, gift bag & Refreshments)

Saturday ONLY    -    $45.00    (Tee/gift bag/Continental Bkft & Lunch)

Saturday BANQUET ONLY    -    $50.00    (Booklet, Dinner & Dance)

Sunday ONLY    -     $25.00   (Continental Bkft + Boston Tour)

Monday WVD    -    June 25   -   ($15.00Continental Bkft)

TOTAL= $175.00 (Full Weekend)

Conference WITHOUT Boston Tour and Monday: $140.00 

With DONATIONS  - Cost = $185.00 ($50 discount)

 CHILDREN under 18 - HALF Price - $85.00  or $55.00

 

-  (Does NOT Include Hotel) - 

Friday: Registration/Tee Shirt/Gift Bags/Refreshments/Speaker  

Saturday AM: Light Breakfast/Children & Speakers/Lunch

Saturday PM: ASK the Docs/Research

        Saturday PM: Banquet Buffet/Dance

Sunday Session:  Speakers/Bag Lunch/Boston TOUR

Monday: "Happy WVD 2018"  - Speakers

 

 


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