VITILIGO Friends "VITFriends"

A Vitiligo Support Community of FRIENDS

               UNDER CONSTRUCTION

Click to add text, images, and other content

title

Global Celebration

"June 25th is World Vitiligo Day - a date where millions of people across the world come together to increase awareness of vitiligo, fight prejudice and raise funds for research, support and education.  The campaign headquarters 2017 will be in Sao Paulo, Brazil, under the presidency of Professor Paulo Cunha. He is well known for his unerring support for the World Vitiligo Day since it's inception and he does incredible work with underprivileged communities, including with many Amazonian tribes - who have no access to medical care or dermatological services"(www.25june.org) 

title

U.S. World Vitiligo Day 2017 Theme:  Step Up for Vitiligo: A Call for Truth, Hope & Change!!

Reflecting the mission of the “Step Up for Vitiligo” campaign that came out of the Vitiligo Working Group's 2016 campaign for awareness, the 2017 event theme will encourage the vitiligo community to take action in raising awareness around the condition. Throughout the three-day program, attendees will hear from leading dermatologists and vitiligo advocates as they discuss the face, voice and science of vitiligo. 

title

What Should I Know About Detroit If I’ve Never Been There?

Detroit has a rich history and lots to offer as a tourist destination while you’re visiting for World Vitiligo Day. The birthplace of the automobile industry, the city was once recognized as the Motor City and today is recognized as the “come back city” after the most recent economic down turn. Detroit is also where Motown Records started and where artists like Marvin Gaye, Diana Ross, Stevie Wonder, The Temptations, and Michael Jackson and many others got their start. Detroit offers hometown goods like McClure’s Pickles, Germack Nuts, Faygo Pop, Vernors Ginger Ale, and Better Made Potato Chips. The city’s downtown riverfront offers beautiful scenery and faces Windsor Ontario, Canada and Belle Isle Park where the Grand Prix is held.

title

-Strong Vitiligo Support Group volunteered to host the U.S. 2017 World Vitiligo Day events. This Detroit based support group focuses on the mental and emotional support for people with vitiligo.  V-Strong is setting an example followed by support groups around the world.

 

         How did V-Strong get its start?  Lee Thomas of Fox 2 News Detroit started it all... it began with a phone call from a young man suffering from vitiligo. Before the book "Turning White" and all of the attention, Lee was working on the air everyday with make-up on his face but not on his hands. It was on purpose, people with vitiligo know what's up and others would write in and ask. Lee would then answer them if their efforts were sincere. The truth is most people didn't even notice. One day a viewer called to ask me if Lee would speak to her son. He was suffering from vitiligo and she wanted Lee to talk to him and hopefully inspire confidence. Once Lee spoke to the young man he realized he was strong and headed in the right direction. As the conversation ended the young man said something that changed Lee's life. "Would you show your face without make up". Lee asked "why" and then he said,"If you show people what you look like then maybe they will treat me differently".  The answer became easy!

          From that conversation, Lee told his story on the newscast. The 3 minute news story eventually became the book, and along with Dr. Henry Lim of Henry Ford Hospital a support group (V-Strong) and a mission that we continue today.  ClarityLTF, (a Lee Thomas foundation that powers V-Strong-A Detroit MI Vitiligo support community) is here for support, awareness, fundraising and collaboration. 

title

Click to add text, images, and other content

title

Click to add text, images, and other content

What is World Vitiligo Day?


World Vitiligo Day was first celebrated in 2011 and has since become a global event with the purpose of raising awareness and recognition of the bullying, social neglect, psychological trauma and disability of the millions of people affected by vitiligo. This past year, vitiligo organizations from across the U.S and Canada met in Detroit, MI. for our second national celebration with over 175 people including seven world renowned U.S Dermatologist who specializes in Vitiligo and two foreign researchers.