VITILIGO Friends "VITFriends"

A Vitiligo Support Community of FRIENDS

               UNDER CONSTRUCTION

"Hope for Research and our Future"

What is World VITILIGO Day?

World Vitiligo Day was first celebrated in 2011 and has since become a global event with the purpose of raising awareness and recognition of the bullying, social neglect, psychological trauma and disability of the millions of people affected by vitiligo.

The first National Patient-led World Vitiligo Day Celebration and RALLY, that saw folks from Africa, Russia, Canada and the USA, was held on the U. S. Capitol Steps in Washington, D.C. in 2016 and hosted by VITFriends. Then 2017, vitiligo organizations from across the U.S and Canada, along with seven renowned U.S Dermatologist who specializes in Vitiligo and two foreign researchers gathered in Detroit, MI for our World Vitiligo Conference that was hosted by V-Strong and Lee Thomas Clarify Foundation.

 

June 25th - World Vitiligo Day - is a day when millions of people across the world gather to bring awareness to Vitiligo, fight prejudice and raise funds for research, support and education.

Thanks to the efforts of Yan Valle, CEO Vitiligo Research Foundation,Vitiligo is NOW listed on the U.N. Calendar of Events. https://www.un.org/development/desa/disabilities/calendar.html

Today, World VITILIGO Day is certainly a Global Celebration!

 

The Genesis of our RALLY / Conference:

VITFriends (Vitiligo Friends) Support Group’s President and  Founder, Valarie Molyneaux, after learning in 2014 about H.R. 3520 of 1975 and 1977 that was presented by Rep Parrin Mitchell to the 94th and 95th Congress to address VITILIGO, still sits dormant, she begun to talk to other patient group leaders about it.

In 2015 Valarie encouraged the VITFriends team to RALLY on the Massachusetts State House Steps. They garnered the support of Dr. John Harris of UMass Vitiligo Clinic and Research Center, Yan Valle, CEO of Vitiligo Research Foundation, Senator Gloria Fox and we had an 45 minutes audience with the Senator and shared about Bill H.R.3520, the needs of our global Vitiligo Community and our local support group. That first VITFriends Rally was a success!

Then in 2016, Valarie had the vision for Washington, D.C. and after conversation with Natasha of Atlanta and Kim of Detroit about their groups working together and getting their commitment to participate if she coordinated a RALLY on the U. S. Capitol Steps plans were put into motion. With a resounding UNIFIED - YES response about working together, and the hard work of Rev. Dr. Wallace Henry, III our D.C. VITFriends Leader / coordinator our 2016 Rally was a HUGE success!  

 

U.S. World Vitiligo Day 2018 

Our mission is to sound the alarm that VITILIGO is a skin disease worthy of attention, that Funding for Research into the Cause and Cure of Vitiligo is NEEDED, Adequate insurance coverage is NEEDED, Federal and Local funding for support is NEEDED.

Our theme speak to the HOPE that we ALL hold dear too for research into a Cause and Cure in our generation and Hope for the future of our Young people who suffer bullying, social isolation, trauma and more all because of their Vitiligo. 

 

What should you know about UMass Medical?

What Should I Know About Detroit If I’ve Never Been There?

Detroit has a rich history and lots to offer as a tourist destination while you’re visiting for World Vitiligo Day. The birthplace of the automobile industry, the city was once recognized as the Motor City and today is recognized as the “come back city” after the most recent economic down turn. Detroit is also where Motown Records started and where artists like Marvin Gaye, Diana Ross, Stevie Wonder, The Temptations, and Michael Jackson and many others got their start. Detroit offers hometown goods like McClure’s Pickles, Germack Nuts, Faygo Pop, Vernors Ginger Ale, and Better Made Potato Chips. The city’s downtown riverfront offers beautiful scenery and faces Windsor Ontario, Canada and Belle Isle Park where the Grand Prix is held.

REGISTRATION

World Vitiligo Day Conference COST:

Friday Night ONLY    -    $50.00     (Tee Shirt, gift bag & Refreshments)

Saturday ONLY    -    $60.00    (Tee/gift bag/Continental Bkft & Lunch)

Saturday BANQUET ONLY    -    $75.00    (Beechwood + Booklet)

Sunday ONLY    -     ($25.00 Continental Bkft + Boston Tour)

Monday WVD    -    June 25   -   ($25.00Continental Bkft)

TOTAL= $235.00

With DONATIONS  - Cost = $185.00 ($50 discount)

 CHILDREN under 18 - HALF Price

 

-  (Does NOT Include Hotel) - 

Friday: Registration/Tee Shirt/Gift Bags/Refreshments/Speaker  

Saturday AM: Light Breakfast/Children & Speakers/Lunch

Saturday PM: ASK the Docs/Research/ Banquet Buffet/Dance

Sunday Session:  Speakers/Bag Lunch/Boston TOUR

Monday: "Happy WVD 2018"  - Speakers

 

 


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