What is Vitiligo?
Vitiligo also known as leucoderma, which simply means white (leuco) skin (derma), i.e. a disorder where the skin loses its normal coloration. It is also medically known as achromia, which means loss of color. Vitiligo is pronounced Vit-ti-li-go (like saying...Little I Go/Vitiligo)
Basically, Vitiligo can hardly be called as a disease but a skin-disorder that has more social than medical significance, especially amongst the dark skinned people. Due to destruction of the melanin (pigment) cells due to lesser known processes (largely what is called as an auto-immune disorder) the normal skin starts loosing pigments from various parts of the skin, in a varying speed and extent. Our clinical experience based on the treatment of over 4500 cases, suggests that there is a strong genetic factor in the background of most cases, especially those who have extensive vitiligo or those who have vitiligo affecting the finger-tips, toes, lips or the genitals. The indication of strong genetic factor is observed in the form of family history of one or more of the auto-immune diseases such as vitiligo, diabetes, hypothyroid, alopecia areata, cancer, rheumatoid arthritis or allergies.
The vitiligo sufferers are observed all over the world, including the white skin communities. However, epidemiologically most cases are recorded in India (8.8%) and Mexico. Estimated 1-2% of the Americans have vitiligo as per the survey made by the American Academy of Dermatology. Males and females are affected equally, inclusive of children age group. It may begin at any age. Childhood vitiligo is not uncommon.
What Research Is Being Done on Vitiligo?
For more than a decade, research on how melanocytes play a role in vitiligo has greatly increased. This includes research on autologous melanocyte transplants. At the University of Colorado, National Institute of Arthritis and Musculoskeletal and Skin Disease (NIAMS) supports a large collaborative project involving families with vitiligo in the United States and the United Kingdom. To date, over 2,400 patients are involved. It is hoped that genetic analysis of these families will uncover the location--and possibly the specific gene or genes--conferring susceptibility to the disease. Doctors and researchers continue to look for the causes of and new treatments for vitiligo.
What do you see when you see me?
What are you looking at?
Are you looking at me?
What's with those EYES?
Do I look like you?
Are you curious?
Do I make you sick?
ARE you NEXT?
.....You should have questions for the medical community - Do you? Do you care to know? Could YOU...?
Randy: What do YOU believe to be the root cause of vitiligo?
Dr_Grimes: Well, I view vitiligo as a heterogeneous condition....there are multiple causes and pathways that can cause the destruction of melanocytes (pigment cells).
Dr_Grimes: For MOST patients, perhaps as high as 50 or 60%, it is auto-immune based. You can inherit the tendency or susceptibility...just like other auto-immune disorders.
Dr_Grimes: But there are also environmental triggers. I think that this clearly is a cause for SOME people. Exposure to certain environmental chemicals can cause vitiligo...drugs can induce vitiligo...such as a response to penicillin and other drug reactions.
A Questionnaire from: Vitiligo Support International
Here are my personal answers:
1.) Tell me, what’s been your personal experience with vitiligo?Not good. Having the cashier at grocery store put my change down on the counter - hurts.
2.) Think back to when you were first diagnosed with vitiligo, what was that like?
It was awful. Just to think of myself as disfigured - hurts.
3.) How can one cope with the emotional and psychological aspects of vitiligo?
Dive into GOD and the things that pleases him, that’ll work.
4.) How would you describe the obstacles of living with vitiligo?
HARD, it limit my going out, but having a loving family and great friends is so key.
5.) What options are available for you – in terms of support?
There are really NO support locally that I have found. So I have put together this website and it has been a GREAT source of strength. Also, having Vitiligosupport.com and my church family, they are my biggest support
My HEART Speaks is our presidents very first collection of poems, and she would love for you to have a copy.
Purchasing a copy of this book, for ONLY $18.00 is one of the ways that you can support this web site.
Brand NEW - Second Edition and available now. "My HEART Speak."
This was recorded live at the Weston Public Library, Weston, MA. Valarie was honored with a night of poetry reading and book signing. Valarie's work can be found in the "Weston Reads Poetry Anthology 2005. pg 115" located in the Weston Public Library.
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