VITFriends is pleased to WELCOME our new relationship with Dr. David Rosmarin of Tufts New England Medical Center, Boston, MA.
We are further please to report that our Medical Advisor Dr. Vaneeta Sheth is collabotating with him and others on a NEW Study of Topical Ruxolitinib to be used for facial vitiligo. They are reporting dramatic improvement with the use of this medication.
Here's a look at this document in Healio Medical NEWS:
VITFriends WELCOME....Association Française du Vitiligo...French
We WELCOME President - Jean-Marie Meurant, Paris, France. Bonjour!
Learn more about them at:
VITFriends is pleased to WELCOME to our Board of Directors, our very active and involved Medical Students and they are:
Renata - University of Mass, Worcester, MA
Fi - Harvard University, Cambridge, MA
Join VITFriends LIVE on Radio and Facebook
on Friday, April14 @ 2pm
Vitiligo Research Foundation and Yan Valle, CEO and the efforts of many others, including over 500,000 signatures that was submitted, World VITILIGO Day NOW appears on the UN Calendar of Global Events! https://www.un.org/development/desa/disabilities/calendar.html
Dr John Harris - VITFriends Board Member.
Here is his VITILIGO report from Rome, Italy
- VRF supports the work of VITFriends and we are Grateful!
VRF has become a consultative member of the United Nation ECOSOC
- U.S. Congress is re-considering the National Vitiligo Control Act – a bill from 1977 that never made it through Congress but amongst its stated purposes called for ‘the attainment of better methods of control, diagnosis and treatment’ for vitiligo.
- Congress undoubtedly took note of the massive rally at the Capitol Hill on June 25th, part of another record-beating World Vitiligo Day that saw huge crowds attend events across the world.
American Academy of Dermatology Boston Meeting - 7/30/16
Our President Valarie Molyneaux states..."It was an honor and privilege for me to be in the company of some of the country's top dermatologist with the opportunity to share my story and share the work of VITFriends and the importance and NEED of support groups."
On behalf of VITFriends, Valarie presented Dr Pearl Grimes and Dr Seemal R. Desai with their World Vitiligo Tee Shirts. She took the opportunity to express sadness that Dr Desai at the last minute had to cancel joining us in D.C. and she thanked Dr Grimes for her recorded congratulatory message that was played during our World Vitiligo Banquet.
Search for Clinical Trials in Vitiligo:
We report SUCCESS of our 1st Annual coming together as a community. Report we have received put it at over 300 people on RALLY Day. Here's just a quick look with so much more to come.
This link (folder) gives you a view of what transpired on WVD2016:
2016 QUOTE: "Look how far we've come" - Alicia Roufs, MN Leader
Our World Vitiligo Weekend and WVD Celebration
was made possible by the financial contributions of the following:
VWG is a physician-led organization that is supportive of the Vitiligo Community and their main goal to improve the lives of people with Vitiligo.
A special THANK YOU to WVG for being the major DONOR of our 2016 World Vitiligo Weekend helping to make this event possible.
To learn more about this very important organization and what they are doing for our community VISIT their website and facebook pages for details.
Special Thank you to Van Yalle, CEO of VRF, who ia a supporter of the work of VITFriends over the past few years. Yan attended our Vitiligo Weekend in D.C. and spoke at our World Vitiligo Day Rally on the Capitol Steps.
A special THANK YOU to VRF for being the DONOR of our 2016 World Vitiligo Weekend, helping to make this event possible.
Here is a report about the application for membership to the United Nation,
VITFriends wishes to extend a very special THANK YOU to RECOULER and its founder Audrey VanStockhum for being the DONOR of our 2016 World Vitiligo Weekend, helping to make this event possible.
Our VITFriends president, Valarie Molyneaux serves on the planning board of the Global Vitiligo Support Community (GVSC) which is a group whose aim it is to bring ALL Vitiligo Support Groups together local and international for information sharing and collaboration on all issues relating to finding a cure for Vitiligo. This group is chaired by our friend and VITFriends supporter Dr. Richard Huggins of Detroit, MI
Global Vitiligo Support Community
Vitiligo Working Group Membership
Vitiligo Research Foundation Partnership
NIAMS Coalition Membership
A look back at 2015
- Regular Meetings in various states across the USA
- World Vitiligo Day Celebrations - Globally
- NC WVD Photo Op with Governor Pat McCrory and Sheriff Donnie Harrison
- Boston World Vitiligo Day - State House Celebration
- Boston 2015 Conference “My Strength - Mind, Body and Soul”
- MA State House Visit Follow-up visit with Senator Linda Forry
- MA Commission on the Status of Women
Journaling is good therapy!
Here's what the first V-Strong/Detroit, MI meeting of 2016 had to say about that subject:
See our Life Coaching Service if interested.
Talk can be Therapy!
Consider our LIFE COACH....
See our President/Founder page
Coaching - TALK Therapy
Let’s TALK: So that we can HELP answer your questions, as we establish a new coaching relationship.
Let’s TALK: About frequency of calls and fees.
Let’s TALK: About establishing clear goals.
Call NOW - 1-844-374-3639
Vitiligo Research Foudation, the worlds leading vitiligo organization and our leading organization is needing your help with your answer to their current question:
WHAT IS ONE THING YOU WISH OTHERS COULD UNDERSTAND ABOUT LIVING WITH VITILIGO?
Rheumatoid arthritis drug appears promising
Treating VITILIGO patients with Rheumatoid Arthritis drug appears promising
A case studied published in JAMA Dermatology has found that treatment with oral tofacitinib citrate (Xeljanz) — an FDA-approved treatment for rheumatoid arthritis — demonstrated partial repigmentation in a vitiligo patient. Tofacitinib is a JAK 1/3 inhibitor, which is one of the signaling components for the vitiligo pathway. Vitiligo is just one of several skin conditions that have limited treatment options. However, dermatologists are working diligently to come up with new therapies. Read more about new treatment options for vitiligo in the July 2014 issue of Dermatology World. Also, stay tuned for an in-depth look at conditions that are ripe for the development of biologic treatments in Dermatology World’s September special focus issue on biologics.
CMS posts physician-industry financial transactions for 2014
In an effort to increase transparency in health care, CMS has published information about the 11.4 million financial transactions — totaling $6.49 billion — that were attributed to more than 600,000 physicians in 2014 on its Open Payments site. The Open Payments website is a database created by the Sunshine Act that highlights the financial relationships between health care providers and the pharmaceutical and medical device industries. CMS has pledged to release the data on an annual basis. As the push for transparency in health care continues, physicians are finding that their payment information is regularly available for public viewing. Read more about physician payment transparency, how dermatologists can handle the increased scrutiny, and how they can use it to benchmark themselves in the May issue of Dermatology World.
Supreme Court upholds federal health insurance exchange subsidies
The Supreme Court has ruled 6-3 that the federal subsidies provided to millions of Americans to purchase coverage under the Affordable Care Act’s (ACA) insurance exchanges are legal. About 6.4 million individuals receive federal subsidies for enrollment in the 34 federally run exchanges. Since the implementation of the insurance exchanges, dermatologists have experienced both positive and negative sides of the system — from increased patient access to insurance to narrowed provider networks. Read more about how the ACA is affecting dermatology in the June 2014 issue of Dermatology World. Stay tuned for Dermatology World’s August issue that will cover how to purchase insurance for your employees through the ACA’s Small Business Health Options Program (SHOP) marketplace. Also, don’t miss the October issue that will discuss how to help your patients understand the exchanges and obtain coverage that includes your care.
World VITILIGO Day was a success and here is one report.
April 20 a few states, with the governments approval, recognized this date as the unofficial POT SMOKER Day. Yet, approval for a VITILIGO Day is STILL a struggle. Please, let your VOICE be heard, speak to your local State Rep and write your Representation in congress and tell them that we DEMAND their support for June 25 for a World Vitiligo Day. Many of these Representative do not have any idea of what Vitiligo is, so AWARENESS is key.
There are some people who simply do NOT believe me that a Pot Smoker day exist, so here is the info..
The thought of this brings tears to my eyes because we WANT our own DAY as well. The GUN/Riffle Association people, the gay/lesbian/trans-gender and the POT community have a strong voice, so they get things done. Please let us come together, support this effort and get attention, hence get the government to listen to us.
One desire of our VITFriends organization is to HIRE a lobbyist to help us with the details...but we need you. We need your financial HELP. Our last inquiry revealed a lobbyist FEE that we cannot accomodate at this time in our growth. It's been frustrating and sad, but we know that it is our time, so we will continue to work hard! Your gift is TAX DEDUCTIBLE. Thank you! http://www.vitfriends.org/donate.htm?hc_location=ufi
The pot smokers and others are standing STRONG together...Let's STAND together, let's do this!
The Vitiligo Community NEEDS your support, 500,000 signatures are required by the UN. Please review and sign this petition.... (click below)
QUESTION: How important are Vitiligo Support Groups, especially to a newly diagnosed patient?
RESPONSE: John E. Harris, MD, PhD - Assistant Professor
364 Plantation St, Worcester MA 01605
Office: 508-856-1982 Fax: 508-856-5463 Clinic appointment: 508-334-5979 http://www.umassmed.edu/vitiligo
RESPONSE: Dr. Vaneeta M. Sheth, MD; 221 Longwood Ave, Boston, MA 617-732-4918
Dr. Vaneeta says: "I would echo Dr.John's sentiments".....
Dr. John Harris
UMass Medical Center, Worcester, MA
Dr. John is our 2015 VITFriends Conference
Greeting from our VITFriends Family:
Are you struggling to cope with your vitiligo or anything for that matter; well, here are the words in song written by Rev. Marvin Sapp after the death of his 40something year old wife:
YOU...will make it!....You CAN make.........
Life - and - FRIENDS
LIFE - is too short to wake up with regrets.
So love the people who treat you right.
Forget about the one's who don't believe everything happens for a reason.
If you get a second chance, grab it with both hands.
If it changes your life,let it.
Nobody said life would be easy, they just promised it would be worth it.
Friends - are like balloons; once you let them go, you can't get them back.
So I'm gonna tie you to my heart so I never lose you.
Our FRIENDS visit with us from all over the world. Here are just a few of those great Cities and Countries that our FRIENDS come from. You can also read their stories in our Guestbook: